To Top

Holiday Break End of Year 2021 Policy Alert MedicAlert Rare Disease Day 2022 RDACs

More Info >

Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate. Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >


  • Far From “Normal”: Brenda’s Rare Disease Story

    “Brenda's story is about defiance, strength and living your best rare life, even when the road you face is tough and uncertain”

    Read more >

  • NORD Gives Back: Partnership and Connection

    Read more >

  • Helping Rare Disease Patients: A Conversation with Dr. Neilan about the Rare Disease Centers of Excellence Program

    Read more >

  • The Importance of Patient Voices and Data Analytics

    Read more >