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Holiday Break End of Year 2021 Policy Alert MedicAlert Rare Disease Day 2022 RDACs

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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate. Start now >

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The international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Visit site >

News

  • Far From “Normal”: Brenda’s Rare Disease Story

    “Brenda's story is about defiance, strength and living your best rare life, even when the road you face is tough and uncertain”

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  • NORD Gives Back: Partnership and Connection

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  • Helping Rare Disease Patients: A Conversation with Dr. Neilan about the Rare Disease Centers of Excellence Program

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  • The Importance of Patient Voices and Data Analytics

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